Monday, June 19, 2006

Further offensiveness

Maggie only rarely reads my postings here, despite my repeated offers of her own byline and some limited editorial control over the contents*. So, when the micro-controversy about the website came down on Saturday, one of the first things she did (besides admonish me for making trouble) is actually go read what I had said. Her comment to me was that she thought I ought to talk about Woody more. In fact, she followed it up yesterday by telling me that she liked that posting more, and when I asked why, she said that it was because it was actually all about him.

I certainly have considered her concerns, but I don't know if it's entirely reasonable to expect that I won't be talking about life in general, or what we're doing, or issues we wrestle with. I mean, I would get pretty bored writing day after day variations on "Chronic lung disease. Sick baby. Eats well. Up 10 grams in weight." (and how bored the hospital's legal department would get-- hi, colleagues!) Besides, the longer this whole process goes on (and I am anticipating that it will drag on another couple of months, at least) the more I realize that spending parts of every day in the NICU is a profoundly weird way to go about life. And besides, if the discussion on lactation is a little strange to have out there, just wait until we get into the discussions of circumcision.

All that being said, Woody is settling nicely into his new room. His smaller tube is bothersome mostly to me, although it's keeping his oxygen requirements far higher than we like to see them. Upon discussion with his (very competent!) doctor I realized that there was the additional issue with his tube of how the volume limitations of a smaller tube can cause complications for pressure: the smaller the tube diameter, the more that the ventilator has to increase the pressure to force the same volume of air through the tube, so that makes me not like this smaller tube even more than I already did. Apparently they will try to get him back up the larger tube tomorrow or the next day. That being said, his blood gas readings are still very, very good, which is odd for all the desats and other dips he's been doing ever since the extubation. I'll be glad to see him stable and re-tubed soon.

Woody is 970 grams today, day 39.
*She actually has asserted that she has veto power over anything I say here, which I have never agreed to. We did have an agreement prior to Woody's birth of a limited veto power over aspects of parenting that the other didn't like. The limit? I told Maggie that I wouldn't recognize any use of the veto that was arbitrary and capricious, or manifestly unfair. Damned lawyers.

4 Comments:

At 6:28 PM, Anonymous jared said...

Amen Maggie.

And Amen Nathan.

You both are far too trained in the black / white - right / wrong debate way of thinking if you cannot or do not see that both of you are correct on the issues you present.

My $0.02: Nathan, it is your Blog, write as you see fit. Maggie, it is your son, in all that you do and all for which you advocate, put him first. Nathan, it is your wife, appease and please her.

~ Much love from a non-blood brother ~

 
At 2:32 PM, Blogger Bill Hooker said...

just wait until we get into the discussions of circumcision.

Aw dude, you're not gonna are you?

 
At 3:38 PM, Blogger Nathan said...

See? I haven't even made the post and troublemakers like you are already busting my chops! You wait until I talk about it, bub.


xox

 
At 4:11 PM, Anonymous Traci Esades said...

Nathan, Maggie, & Woody,

You are all such amazing people! I've been cheering you on since Vince forwarded your website to me last week.

I can relate a bit to the marathon you are running. Our daughter was premature (32 weeks), had a traumatic birth, surgery a few weeks later, and finally came home after about 7 weeks in the NICU/ICC.

I think our daughter was in the new NICU room you described. You will be much happier there. It's nice and quiet most of the time. -By the way, Woody is in the best place possible. I’m sure you’ve probably heard this a lot and probably even from the nurses and doctors at the hospital. They are amazing people.

Nathan, I enjoy your postings so much, keep it up. It's a great way for your family and friends to check in and it's good for your soul too. I posted journals almost daily of the smallest details of Harper’s progress on the caringbridge website and found it so therapeutic. So much happens each day and it’s hard to keep track and understand it all at the same time. It helped me to ask a million questions, sometimes twice, and then have to retell it.

Woody is a lucky little boy to have such strong parents and his strength is such a reflection of you both. This is an emotionally draining time for you guys but you will get through it. Be good to each other, get some sleep, accept help when it’s offered/ask when you need to, and give Woody all of your love every day and you guys will do great.

You all are in our thoughts and we wish you the best!

Peace,
Traci Esades (& Vince, Demitri, & Harper)

 

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